Sunday, February 28, 2010

Mama's Grumpy Baby

See this beautiful grumpy face. Well one week ago, the day this picture was taken, I heard giggling in the morning coming from the room Samantha shares with Adam. I was so happy that they were waking up happy. As I walked in I realized that only one of them was happy. Adam was giggling and as soon as I walked in Samantha announced loudly, "I don't like it when he laughs!!". Our conversation follows.

Mom: Samantha please don't be so negative. You don't like anything he does and right now he isn't doing anything wrong.

Samantha: Make him stop laughing.

Mom: He's not doing anything wrong. You really are going to have to find a way to be happy. You are so negative towards him. It is really frustrating me and I am sure it is frustrating Adam.

Samantha: Well that's only two people!

I am certain I could have given her a long list of people frustrated with her behavior and it still wouldn't have made a difference.

Well that was a week ago and what a difference a week can make. She ran into the kitchen Friday and announced "Mom, I love him now!" Sam does things in her own time on her own schedule. She has been so sweet to him lately, helping him get his shoes on, sharing toys, and giving him hugs. I think she realized it is fun to have another little person her age around to play with.

She still has moments of weakness when she's tired that her attitude towards him is not so great but for the past several days a change has occurred that is encouraging to all of us.

I think the two of them, eventually, will be just fine!

Blessings to you!

Saturday, February 27, 2010

Medical update

Adam saw two different doctors this week. The neurologist and the orthopedic surgeon. This makes 5 doctor's appointments and a lab appointment in 3 weeks. This will continue as we start physical therapy Monday, see the neurosurgeon the next week, have two procedures done in the next few weeks and see the opthamalogist by the end on March.

Yesterday at the ortho appointment he was so good. They took two xray's, one of his hips and one of his spine. He never cried. He lie perfectly still while they took the pictures. He let them role him on his side and put his legs in position and wasn't scared at all. You can tell he has done this before. With all he has been through and continues to go through he is still such a sweet boy.

Next week he will have a procedure done to get his left foot into a flexed position. It is very tight in a pointed position. His right foot is also pointed but you can manually move it to flex. The left one won't budge. The procedure next Friday will cut the tendon in his left heel to allow his foot to flex. It will be cast for 6 weeks. He will be measured for AFO's to keep his feet flexed and for braces. We will begin working in physical therapy to get him upright. I left the appointment yesterday with tears in my eyes. I could hardly tell Greg " They are going to try get him on his feet." Adam has never held his own weight on flat feet. Of course I will update this site as soon as possible as things progress. We are so hopeful for him!

The other issue is he does have one dislocated hip. We are not sure how this will be treated. Most of the time with Spina Bifida both hips are dislocated and neither is treated. In a higher functioning patient treatment may be the best route. We won't know the extent of his mobility functioning for awhile so for now we are just waiting on that.

The neurologist felt like we may not need her on a regular basis. She handles more of the cognitive issues that can come along with SB. Not all SB patients have cognitive delays or brain malformations. The thinking now is he does not. A brain scan will be done when the neurosurgeon does his spinal scan and then we will know for sure.

Wow that is a lot to take in. We are just taking one day at a time. We have great doctors and we are trusting the expertise in each of these areas. Adam seems completely unaffected by what is going on around him. He is happy and just wants to play with his brothers and sisters.

I am going to post this weekend an update on Sam and Adam's relationship. They really have come a long way. I am also thinking about changing the name of the blog to reflect more of a family blog. The older three have each had some accomplishments lately that I would like to share. That will be sometime next week in between the PT and the ortho procedure! Here is a hint at what I might call it.

Proverbs 24: 3-4
By wisdom a house is built,
and through understanding it is established;
through knowledge its rooms are filled
with rare and beautiful treasures.

Blessings to you!

PS- Obviously I have no medical training so these updates will be in "Mom terms" not "medical terms". I am learning so much more that I knew before.

Sunday, February 21, 2010


Looking out the window for C.J. who is waiting for his bus.

Shooting hoops with C.J.

Loving his new wheels.

Thanks to our friends the Ladniers, Adam has a new set of wheels. We are borrowing their daughter's wheel chair from when she was three. At first he was afraid of it. Now he LOVES it. His perspective has changed. He used to crawl all over our house. Now he can sit up and see so many new things. The other day he wheeled up to every window just to check out the view from each side of our house. I watched him go from window to window to see what was out there just because he could. He can also go down to the cul-de-sac where the basketball goal is. He really enjoyed being out there and able to move himself wherever he wanted. Our next purchase will be a shorter goal so he can make the shot.

He loves to be outside just like the rest of our kids. The weather this weekend in Charlotte was beautiful. He spent many hours out with the neighborhood kids. They were playing capture the flag. All the kids have really been sweet trying to find a way for him to play too.

Adam is such an easy going child. He is happy no matter where he is or what he is doing. He is such a pleasure to be around. The only time he gets upset is when his siblings have to leave. He cries for 20 minutes each time someone leaves. The picture at the top is of him looking out at C.J. as C.J. waits for the bus. He wheeled himself over to the window as he cried for his brother. He loves his brothers and sisters so so much!

Today we will take him to our church for the first time. We are looking forward to that. Next week he sees the neurologist and the orthopedic doctor. I post an update on what we find out.
Until then, have a great Sunday!

Blessings to you!

Tuesday, February 16, 2010

Coming Down

Anyone that has ever had a mountain top experience with God will understand what I am trying to say. I am certain this feeling is true for everyone who has ever adopted. When you get home you are physically worn out. The travel is hard. The time change is hard but there is more than just the physical exhaustion. There is a coming down from the mountain top. It, in itself, is an emotional experience. It takes time to process all that has happened. It takes time to realize that this child who was once a dream, just a face in a picture, is now part of your family like he's always been there. Getting back in a routine can make you forget the miracles that have taken place and yet you don't want to forget. As you come down you process pieces of the journey slowly at first as the fog clears and then more clearly. In the midst of the travel there is so much to do to complete the paperwork and medical exam. You are focused on bonding with and caring for your child. You are worried about those you left at home. You rarely think about the wonder of answered prayer and a calling that God has seen through. It is not until the trip down the mountain that these things hit you hard.

That is where we are. I can hardly even tell our story right now to those who have questions. It is why I haven't posted yet about the miracles and answered prayers of this trip. It almost seems to good to be true, like it happened to someone else.

When we finally come down I hope I am able to look back and see all God has brought us through clearly. It is then that we will be looking for that next mountain God wants us to climb!

Blessings To You!